A newborn baby that came into the world with a rare congenital heart condition got an early and miraculous Valentine’s Day gift this past weekend.
Emma Detwiler was diagnosed in utero with Pulmonary atresia with an intact ventricular septum and Hypoplastic Right Ventricle (HRHS), a disease that, due to its severity, comes with an unknown life expectancy.The specifics associated with the illness are complex but, more simply put, the baby’s heart in unable to pump enough blood to their lungs, making breathing difficult.
The rare disorder impacts a small number of infants every year, and the families that do receive the devastating news are typically asked if they want to carry the child to term. In the case of the Detwilers, Emma’s parents, they said yes. When Emma was born a few months ago, she was immediately put on life support with little hope of getting off unless she received a new heart. A long shot, but a possible one.
Baby Emma, now known as “Emma Strong,” had her fair share of setbacks while waiting for a new heart. One of the most threatening being when her blood turned septic, a condition that most don’t recover from, much less an infant on life support. At the time, Emma’s days seemed numbered.